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For most people, learning they have a 90 percent chance of developing cancer would be devastating. But for 17-year-old Casey Longstreet, it was a call to action.

“I’m not living in fear. I don’t want to live my life in fear. I want to go out and make a difference in this world,” Casey said.

Casey has a rare mutation of the TP53 gene — a gene that provides the body with instructions for suppressing tumors. Having this mutation gives her a chance of more than a 90 percent of developing cancer.

Her little brother, Tanner Longstreet, had the mutated gene, too. Tanner died from a glioblastoma brain tumor when he was 11.

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IMAGE: Longstreet family

The Longstreet family (clockwise from top left): Greg, Marlo, Tanner and Casey. Photo courtesy of Marlo Longstreet

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Click link below for article and video:

http://www.nbcnews.com/tech/tech-news/young-woman-hopes-pioneering-study-her-genetic-cancer-risk-will-n670156

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